I cannot believe how great this week has been. It seems that every day we've gone to the hospital, we've gotten only smiles and good news. We even had an hour-long meeting with the doctor yesterday, and unlike the last meeting which was a huge reality check for us (the doctor said 'your girls are very, very sick'), this meeting went really well. Compared to most newborns the girls are still of course sick, but the prognosis looks quite good. In Finland in the past years there have very rarely been cases of blindness and it's also uncommon for there to be severe mental retardation or cerebral palsy. The doctors can't of course promise anything because they won't even know for months (or even years) what damage has been done to their brains from the brain bleeding, lack of oxygen, etc., but they sound quite positive.
So what do we know? We know for sure that the girls have a chronic lung disease which will be similar to asthma. I have asthma, so it's more than likely that some of our kids would've had asthma anyway. It's scary, but we can definitely deal with that. We also know that the girls will more than likely have to wear glasses. I am practically blind without my contacts, so some of our kids would've most likely had to wear glasses anyway. We also know that it's very likely that the girls will have some learning problems in school. I am a teacher and will of course do as much research as I can on whatever problems they have so I can help them at home. All of these problems seem really manageable.
I don't want to get my hopes up because I know the road is still very long and will have a lot of bumps, but somehow this week has made everything seem a bit better. Most of the tears I've had this week have only been tears of happiness. Speaking of which...today was MOVING DAY!!
The girls are now roommates and that makes me so happy! They are getting big and strong enough that they don't need to be in the closed incubators anymore, so they are sharing the same open bed. I cannot even describe what a big deal this is to me. Sofia and Olivia are going to be together 24 hours a day, which is just how they are supposed to be. Seeing them laying there together with their own little stuffed animals and name tags next to each other...ahhhhh! It makes such a big difference that they are in the open now too. I can just touch them whenever I want...pick them up whenever I want...look at them and comfort them both at the same time. Did I mention what a huge deal this is?? :))) Today is the first time that I really and truly felt like they are my own little babies. I cannot wait to bring them home and have never been more excited than today... :)
The girls' new house...
Roomies
And not to leave out Matias, I have to tell about our fun afternoon at Linnanmäki amusement park. After a few hours with the girls, we took Matias to go on a few rides with Tero's brother Jouni and his son Emil. Matias didn't show too much excitement from his first rides, but at least he wasn't scared or upset either. We think he had fun. :) Nothing beat the shovel though. Matias won a plastic shovel from one of the games, and he would not let go of it for the rest of the day. He even tried to dig on the pavement. Funny. ;)
Matias's first ride
Matias, Daddy, and 'the shovel'
Time to eat, and the shovel is still a hit
i really can't imagine what it must have been like for them when they came out. this crazy, bright, loud new world and then being separated from each other??! HORRIBLE. i'm SO THRILLED they're finally in the same crib. SO THRILLED.
ReplyDeleteWhat a wonderful day, indeed! I am sooooo excited at their progress and thrilled that they are together! The special bond that twins share is amazing! And then there is Matias....what a joy he is! I am so proud of all of you!!!!
ReplyDeletehooray for shovels!! now you can really dig some worms!!!!
ReplyDeleteand hooray for the girls too! they are super blessed to have sooooo much support....
It is so neat to see them in the same bed. I know that you two can deal with anything that comes up. I know there will probably be some downs yet after all the ups but just know that you have so much support and prayers. Thanks so much for doing this blog, I don't know where you get time.
ReplyDeleteMatias is getting so big! I'm sure he will be a good big brother when the girls come home.
Yay for being in the same bed! And an open crib! That is such a big, big milestone! I totally related to what you said about conversations with the Dr. I remember being devastated by what a Dr told us regarding our son's bleeds.... just totally crushed. And then the day came when the news got better and better. I was still aware that there were struggles ahead, but things started to turn more positive as each day went by. Sounds like you are heading in that direction, which is awesome! I hope this week is as good as last. Always thinking and keeping you in my prayers!
ReplyDeleteOh and if you are interested in wanting to prepare yourself a little more for what life will be like when you bring the twins home - my favorite preemie website - http://www.inspire.com/groups/preemie
I'm so glad that you are keeping everyone updated with this site! They are so adorable and tiny! And so happy that things are looking up. You must have so much inner strenth to go through this and remain positive. It's amazing how strong we can be.
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